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User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study.
Germini F, Borg Debono V, Page D, Zuk V, Kucher A, Cotoi C, Hobson N, Sevestre M, Skinner MW, Iorio A; PROBE Investigators. Germini F, et al. Among authors: skinner mw. JMIR Hum Factors. 2022 Mar 2;9(1):e30797. doi: 10.2196/30797. JMIR Hum Factors. 2022. PMID: 35234648 Free PMC article.
Evaluation of the sexual health in people living with hemophilia.
Germini F, Chai-Adisaksopha C, Pete D, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker JS, Thabane L, Crowther MA, Skinner MW, Iorio A. Germini F, et al. Among authors: skinner mw. Haemophilia. 2021 Nov;27(6):993-1001. doi: 10.1111/hae.14410. Epub 2021 Sep 19. Haemophilia. 2021. PMID: 34538001
Assessments of outcome in haemophilia - a patient perspective.
O'Mahony B, Skinner MW, Noone D, Page D, O'Hara J. O'Mahony B, et al. Among authors: skinner mw. Haemophilia. 2016 May;22(3):e208-9. doi: 10.1111/hae.12922. Epub 2016 Mar 14. Haemophilia. 2016. PMID: 26988632 No abstract available.
Eliminating Panglossian thinking in development of AAV therapeutics.
Kaczmarek R, Pierce GF, Noone D, O'Mahony B, Page D, Skinner MW. Kaczmarek R, et al. Among authors: skinner mw. Mol Ther. 2021 Dec 1;29(12):3325-3327. doi: 10.1016/j.ymthe.2021.10.025. Epub 2021 Nov 10. Mol Ther. 2021. PMID: 34758292 Free PMC article. No abstract available.
Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set.
van Balen EC, O'Mahony B, Cnossen MH, Dolan G, Blanchette VS, Fischer K, Gue D, O'Hara J, Iorio A, Jackson S, Konkle BA, Nugent DJ, Coffin D, Skinner MW, Smit C, Srivastava A, van Eenennaam F, van der Bom JG, Gouw SC. van Balen EC, et al. Among authors: skinner mw. Res Pract Thromb Haemost. 2021 Mar 6;5(4):e12488. doi: 10.1002/rth2.12488. eCollection 2021 May. Res Pract Thromb Haemost. 2021. PMID: 34027286 Free PMC article.
World Federation of Hemophilia Gene Therapy Registry.
Konkle BA, Coffin D, Pierce GF, Clark C, George L, Iorio A, Mahlangu J, Naccache M, O'Mahony B, Peyvandi F, Pipe S, Quartel A, Sawyer EK, Skinner MW, Tortella B, Watson C, Winburn I; Members of the WFH Gene Therapy Registery Steering Committee. Konkle BA, et al. Among authors: skinner mw. Haemophilia. 2020 Jul;26(4):563-564. doi: 10.1111/hae.14015. Epub 2020 May 27. Haemophilia. 2020. PMID: 32462720 Free PMC article. No abstract available.
161 results